Saturday, January 16, 2010

The Food We Eat - Allergy Testing

I have discovered, much to my dismay, that allergy testing does not always provide clear-cut answers.  I'm sure those of you who have dealt with allergies, whether seasonal, food related, drug related, latex, insect, r other have found the same frustrations in the process of trying to diagnose and cure (I use this word rather than treat because I feel that many allergies are curable).  Add that to the fact that not everyone agrees about the approach to take in dealing with allergies, and a parent can become pretty confused.  In our case, I am thankful to be able to ask and trust God for His wisdom and His direction in the way that we should choose to deal with allergies and food sensitivities that we've seen in Reagan, Adam, and sometimes even Lincoln.

Our family physician was the first (2 1/2 years ago) to suggest that we try to find the source of Adam & Reagan's eczema rather than continue to use topical steroids to treat.

"Accepted" Allergy diagnostic tools (medically "accepted" - we've 'used' the ones in orange):
  • medical history (family, observed responses, general state of health)
  • blood tests (RAST is medically mainstream, identifies IgE response)
  • prick skin test (identifies IgE)
  • food challenges (physician observed response to eaten foods)
  • elimination diets (take out foods groups for weeks & reintroduce in order to observe a reaction)
 "Other" Allergy diagnostic tools (not "accepted" by mainstream medicine - we've 'used' the ones in orange):
  • Applied Kinesiology Testing (usually done by naturopaths)
  • Body Chemical Analysis (aka - saliva testing also done by naturopaths)
  • Pulse Testing (increased heartrate after exposure to allergenic foods)
  • ELISA Blood test (measures IgG - our allergist ignored this info as useless although our family dr is who prescribed it)
Whoa!  The amount of options just leaves one's head spinning!  We have used many naturopathic tests, which told us that they were 'sick' as well as the ELISA blood test for Adam and Reagan and got some results which seemed normal (having observed the kids react to certain foods) and some which seemed odd (or just plain wrong - like the fact that an observed allergy to peanut did not show up or the positive response to mung bean, which none of us had ever eaten...do you even know what they look like?).  We've since learned just how complicated the immune system is and how much test results can vary!  Although I read much about IgE, IgA, IgG antibodies produced by the body for whatever reason (external contaminants such as pollen or bee stings, or particles of food that are to large to be used in the blood and have 'leaked' through the gut wall), I still struggle to keep it straight.

 From the Food Allergy Initiative website (mainstream):


About 50-60% of all skin and blood tests are false positives. These results occur for two reasons:


•When you eat a food, your digestive system gradually breaks down the food proteins, chopping them into small pieces. But diagnostic tests can’t mimic this allergen-reducing process. Since food proteins are bigger when they interact directly with your skin or blood, it is easier for the IgE antibodies to “see” and attack them. As a result, your tests may show that you are more sensitive to a suspect food than you really are. Thanks to the digestive process, the allergenic proteins are small enough to fly under the IgE radar—and the food is safe for you to eat.


•Members of a food “family” often share similar proteins. For example, if you are allergic to peanuts, your tests may show a positive response to other members of the legume family, such as green beans, even if eating green beans has never been a problem for you. This is known as cross-reactivity. The test is positive because it recognizes a similar protein in peanuts and green beans. But the test is not detecting the real culprit—an entirely different protein found only in peanuts." [emphasis mine]

Well at least that let's us know some reasons why we get such inaccurate results from allergy testing.  It's really quite dissapointing for us because it means that we have to be even more diligent in observing our kids and their responses to the foods they eat. And it doesn't help us to understand what is and what isn't a false positive. So even with a blood test, we are stuck with our best 'guess' based on observation and medical history. 

And an excerp from a different perspective (yes - we are those kinds of nutty people) on diagnosing and treating allergies than the mainstream medical community generally accepts - working to heal the gut to get rid of food allergies...

From Dr. Natasha Campbell-McBride at the GAPS diet website (not mainstream):
"Many people try to identify which foods they react to. However, with damaged gut wall they are likely to absorb most of their foods partially digested, which may cause an immediate reaction or a delayed reaction (a day, a few days or even a couple of weeks later). As these reactions overlap with each other, you can never be sure what exactly you are reacting to on any given day. Testing for food allergies in notoriously unreliable: if one had enough resources to test twice a day for two weeks, they would find that they are "allergic" to everything they eat. As long as the gut wall is damaged and stays damaged, you can be juggling your diet forever removing different foods and never get anywhere. From my clinical experience it is best to concentrate on healing the gut wall with the Introduction Diet [this is the first stage of her recommended dietary approach to healing allergies through the gut]. Once the gut wall is healed, the foods will be digested properly before being absorbed, which will remove most food intolerances and allergies." [emphasis mine]

So we have a history, a blood test (albeit not current - at this point I don't want to spend the money for something so unpredictable anyway), a skin prick test (just last week - I'll post the results later), and now a plan of attack (Gut And Psychology Syndrome Diet).  I know that some find it strange that we aren't just dosing the kids on Zyrtec and cortisone and leaving it at that, but I don't really care what others think.  We are more than willing to use these remedies if we are led that direction.  But until then, we will attempt to make them healthier from the inside out and hope and pray that their symptoms decrease or dissappear altogether.

The Gut and Psychology Syndrom diet is usually used for cases far more serious than ours - autism, depression, ADD, dyslexia, dyspraxia, and schizophrenia - but is recommends for people with continual eczema, asthma, and known food allergies.  It is very, very strict and depending on the individual, may take many months to help the gut get back into a better state of bacterial balance health which is what we feel will actually help our children.  We are thankful that we are already in a place that makes it easier for us to implement it than we ever were before we started eating and cooking whole, healthy foods.  I know I could never have gone from using Campb.ells and CoolW.hip right into this diet (goodness knows it's taken me all 12 years of my marriage and I'm still figuring out this cooking thing)! Still, it will be nearly impossible and full of stress quite difficult for us to eat out of the home in situations with family or at 'away' school or any other fieldtrip that takes us from our kitchen (can you tell I'm nervous about this part?). 

However, I am so optimistic about this new diet!  I hope that our efforts will be God led and blessed with fewer allergies in the future so that years from now the kids won't have to worry about their hurting tummies and itchy skin, nor be diagnosed with worse conditions, like asthma.  For now, I can handle the complaining children, the extra time in the kitchen, and the eyerolling friends.  Even if it doesn't do what we expect it too, is it wrong to be eating more healthily...learning to be better stewards of our bodies?

After all, my children are a heritage from the Lord - they are worth it! 



Andrea

Tuesday, January 5, 2010

The Food We Eat - Attempting to Alleviate Allergies

My head is whirling with information about and planning for alleviating the food allergies that we have in this house!  I don't know why I get so easily overwhelmed but I need to just get with it and get to it in planning our next step in our life with food allergies. 

We learned a lot since our last rotation diet (started back in Feb of 2008, I think).   It was a very stressful diet since it was very complicated. I ended up cooking different foods for practically each person in the house and our food choices were quite limited.  My stress ended up pushing me to junkfood & an outbreak of guttate psoriasis and instead of properly (one at a time and in small amounts) reintroducing foods, I just kind of gave up after 5 months.

However, we did experience many benefits from our first attempt to deal with food sensitivities.  We saw eczema clear up in Adam & Reagan, sleep improve, and dramatic improvement in behavior.  It was enough to prove to me that what I feed my kids is very important!  And although I haven't stayed away from ALL the items which they tested senstive to in the ELISA blood test (quite a list!), we've tried since then to be careful about wheat, cow dairy, eggs, soy, and peanuts.  After so many weeks strictly following that diet, we hoped that what was a 'light' sensitivity' to certain foods would just be ok to relax on, such as rice, coconut (a MAJOR fat staple around here), almond, oat, and yeast.  I didn't, after all, really even know how accurate the blood test is or if it just shows foods that you tend to eat all the time.  And we never had a skin scratch test done or did an elimination diet to investigate further after this rotation diet.

So this last year and a half we have lived with good whole foods and loosely avoided wheat, dairy, eggs, and soy.  I let church snacks & preschool snacks slip and we went to out to eat or to gramndma's on occasion.  I've used yogurt and cheese as snacks when I'm desperate for something high in fat and use butter all the time in order to get the veggies into them.  We let them eat a bunch of no-no's over Thanksgiving and then through to Christmas, from which we are clearly seeing consequences in the form of new ezcema and crankiness.  And Adam also seems to still continually get every virus that comes around - when I thought for sure that he would have a stronger immune system by now.

Which is where we are now as I plan to head us into a new diet in hopes of truly healing everyone's gut (I forgot to mention that I got myself blood tested and showed up allergic to DAIRY and eggs - NOT wheat as I had so thought for sure was my problem!).  'Loosely' avoiding certain foods is not yet enough for Reagan and Adam since I don't think that we've ever truly managed to heal their digestive system.

Our diet will follow "The Gut & Pscyhology Syndrome" book by Dr. Natasha Campbell-McBride.  It is very similar to the Specific Carbohydrate Diet except that all dairy is excluded until the person can handle yoghurt & creme-fraise (a home made soured cream).

The basic start (ghee & homemade yoghurt are first dairy to be brought back while other foods are brought back in one at a time and in small amounts with observation for allergic responses) of this diet is as follows:
*no grains
*no starches (potatoes, corn, beans except lima & navy)
*no dairy 
*no sugar (honey is the only sweetener allowed)
*no soy
*no processed foods (hydrogenated oils, MSG, preservatives, food coloring, etc.)
*peanuts (this goes without saying as we have definitely observed a first immune response to these in Adam!)

Recommended foods:
*all meats (& organ meats) and fish
*eggs (we may be able to have the yoke - don't know yet)
*all non-starch fresh veggies (cooked at first is gentler)
*all fruit, including berries & avocado
*nuts & seeds (soaked first for 12-24 hours)
*navy, lima, string beans, lentils, split peas (no bean flours since they haven't been soaked)
*raw, unheated honey
*water w/lemon & fresh pressed juices; homemade nut milk or coconut milk; homemade meat stocks
*natural saturated meat fats; virgin cold-pressed olive oil or other cold-pressed oils; coconut oil
*homemade fermented dairy allowed later as the gut allows (yoghurt, creme-fraise)

Yes, it is quite restrictive. 
Yes, I am quite nervous about implementing it with young kids who will whine and complain and about having to deal with the difficulties of eating away from home and financing this food. 

But the point is not that this is permantly how we will eat, but that it will provide a resting, healing period for our digestive tracts in order that we may enjoy a wider range of harder to digest or previously allergic foods again in the near future!

In the meantime, as I prepare recipes and plan grocery trips and visit the allergist, I covet your prayers that this may be less stressful and even more beneficial for our family and that I would perservere in peace (not stress) to our goal.... allergy-free eating for us and our kiddos and better health all around!
Andrea

Sunday, January 3, 2010

There's Always that One Kid and...

WE are those parents.

You know the ones...
with the kid who just can not stand still and do his cute little part in the church Christmas play. 
with the kid who refuses to keep his shoes & socks on in the dead of winter. 
with the kid who hasn't a clue what this white headband with sheep ears is and why it must be on his head.

I'm sure every parent get their turn but this year we were the ones...
with the kid who has his hands down the back of his pants and decided that it was funny to let them fall and moon everyone as he walked to his seat (wish I'd gotten THAT on video!).
with the kid who loves to look around him and take it all in as he is supposed to be singing some song about a 'deliberrrr' (Deliverer).

Mischievous sheep in the nativity! from DNAC on Vimeo.

But I am so thankful that his older brother (a wise king in the back) enjoyed his part and that his older sister (a "sheep" behind his left shoulder) is happy to try to guide him and help him with his headband/ears.  This is the first year they have all been old enough to join in this part of the Christmas celebration and we were blessed to have found a new church family in time that they could be part of the play!  I was so proud to be the parent of that one kid!

But maybe next year YOU will be those parents instead of us....or maybe it will be Lincoln's turn to shine? 
Andrea

Saturday, January 2, 2010

Time for theYearly Resolutions!

So many things on my mind that could use work...be changed...improved.  So many things that would fit nicely on a list of resolutions and look so nice with a fat checkmark next to them.  It could be an 'easy' list or an 'unreachable' list, depending on my mood at the time of writing it.  And everyone who knows me understands just how much I.love.a.list!

But I often find that my list of resolutions each year can become burdensome ... bearing guilt instead of accountability, considering the perfectionistic nature which I have.  Causing bouts of doubts in my faith and walk with the Lord.  Dragging me down with reminders of what I am unable to change by myself, as I so often try to do.  And as much as I love a list, I can hardly stand even a smidge of it to remain UNchecked!

This result throughout and at the end of each year is clearly is not God's plan for me - His is to bless me and not to harm me; for me to seek Him with all my heart.

Since this is the way I have been wonderfully made, I think that this year I will make my so-called 'list of resolutions' out of scripture instead and post them on my kitchen cabinets to remind and encourage and remain in my heart & mind.  In this sense, I know that I will NOT be attempting to change myself and thus NONE of them will get a nice little checkmark.  And in this little way, I am hoping to allow the Spirit to more freely move in my life and grow me into all the things that a "list" of personal resolutions would instead have me trying to accomplish of my own strength!  Sound like a plan to you?

So here they are:
*"But the goal of our instruction is love from a pure heart and a good conscience and a sincere faith."  1 Tim. 1:5

*"It was for freedom that Christ set us free; therefore keep standing firm and do not be subject again to a yoke of slavery"  Gal. 5:1  (I am no longer in bondage to food, anger, yelling, pride, controllingness, laziness...)

*"But seek first first His Kingdom and His righteousness, and all these things will be added to you.  So do not worry about tomorrow; for tomorrow will care for itself.  Each day has enough trouble of its own."  Matt. 6:33-34  (Heaven knows how I worry & fret & get distracted away from God!)

*"Let no unwholesome word proceed from our mouth, but only such a word as is good for the dification according to the need of the moment, so that it will give grace to those who hear it.  Do not grieve the Holy Sprit of God, by whom you were sealed for the day of redemption."  Eph. 4:29-30 (I have great difficulty using my words properly with my family)

*"Martha, Martha,' the Lord answered, 'you are worried and upset about many things, but only one thing is needed.  Mary has chosen what is better'"  Luke 10:41-42  (All you Marthas out there know exactly why this one is on the list!)

*"It is the Spirit who gives life; the flesh profits nothing; the words that I have spoken to you are spirit and life."  John 6:63 (My flesh cannot change me - only the Spirit can give me life and give it abundantly!)

*"The effective prayer of a righteous man can accomplish much."  James 5:16b (I should always remember to pray more often and sincerely)

Andrea